October 20, 2012 Meeting


In attendance:  Pat, Dick, Mary Ann, Josephine, Alice, Terri, Catherine and Jeannie.

The minutes from the August meeting were read and approved.  Pat and Mary Ann gave updates on people who had called for assistance/ information concerning dystonia and were helped.  It was reported that Polly and Bill Levert are working on updating the website and they hope to have it completed by the next meeting.  They are still gathering information.  If anyone has anything they can email Polly at pollylevert@bellsouth.net.  Virginia will continue to update the Dothan events.  (President, Pat Wyatt’s computer is down for now.)

Brock Herron of Merz Pharmaceuticals did a 45 minute conference call with the group.  He has been with Merz since the conception of the drug Xeomin.  He reported that they are continuing research on the product, but that it has been found to be very effective.  He discussed that not all drugs work the same for individuals and there are always some side effects.  He sent materials prior to the meeting and they were dispensed in order for everyone to follow along. He went over the guide for diagnosis and treatment, as well as, the patient co-pay program available through Merz.

We learned that there were three basic differences between Botox and Xeomin.  The Xeomin product that emerged about 2005 has the accessory proteins from botulism toxin removed so that it is a purer form.  It costs less than Botox and does not have to be refrigerated and thus compromised.  It also comes in a 50 unit size as opposed to the usual 100 units Botox.  This helps with the waste factor, et.

There was an excellent Q & A session after his presentation, as well as, a group discussion after the call had ended.  We all felt we had gained a greater knowledge after the presentation.  The left over materials are available for those who were not at the meeting. Email Mary Ann with your mailing address at maculott@samford.edu for a copy. The materials will also be made available at out next meeting which is Dec. 1, 2012.  This will be our Christmas Social.

If you would like to get in touch with Brock Herron from Merz for questions et his numbers are 662 703-9120 or 601 707-5366 and his email is bherron@merzusa.com.

Pat ended the meeting by introducing the magazine NEUROLOGY NOW for those not aware of it.  You can receive a free subscription.  Go to www.neurologynow.com.

We hope to see you all at the Xmas Social, Saturday, Dec 1 at 11:00 am, Lakeshore Hospital, second floor.  Mary Ann will provide the ham and a notice will go out a couple of week before so that everyone can contribute a dish. RSVP:  maculott@samford.edu.

NOTE:  We appreciate your patience while we work out the kinks of everyone receiving emails in a timely matter and as the website is being updated.


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