December 2011 Update

HAPPY HOLIDAYS
The research of Dystonia—-cause, treatments & a cure— is indeed SUNNY —- and there is cause to think of the future of Dystonia patient’s being “brighter” than it’s been in years.

AND THAT’S SOMETHING WE CAN ALL BE THANKFUL FOR AS WE BREEZE THROUGH THIS HOLIDAY SEASON AND EMBARK ON A NEW YEAR.

We can be THANKFUL that Dystonia Medical Research Foundation (DMRF) is one of the Dystonia Coalition leading the way toward earlier diagnosis, better treatments & someday a “cure” for this dreadful & mystical disease.

We can be THANKFUL for the money’s we’ve been able to raise for Medical Research through DMRF “plus” the financial support of many Dystonia Support Group of Alabama (DSGA) individuals for other critical Dystonia Research, including:

University of Alabama/Birmingham

DYSTONIA RESEARCH ACCELERATION FUND

UAB & Dr. David G. Standaert has recruited Dr. Karen Jaunarajs as lead researcher for Dystonia.  Dr. Jaunarajas is widely published on Dystonia & other neurological movement disorders.  Everyone is expecting great things from her as she builds this research center focusing only on Dystonia.

University of Alabama/Tuscaloosa

(Caldwell’s WORMSHACK)

Drs. Guy & Kim Caldwell continue their progress and “we” continue to support Alabama Dystonia Scholars to work during summer break on Dystonia Research.

University of FL/Gainesville

Yuqing Li, PhD, a researcher from UAB has been recruited by University of Florida and is making continued progress on Dystonia Research in that facility.

University of TN/Memphis

Dr. Mark Ledoux, whom has spoken to us several times is making great progress with his Dystonia Research projects.

The sun shines brightly over many Dystonia patients & family care givers because of the great MEDICAL RESEARCH DONATIONS by numerous DSGA members….who have as individuals helped fund many of these projects.

It’s the “BEST CHRISTMAS GIFT” you can give to yourself and others. So, a big THANK YOU to everyone!

The next DSGA meeting will be January 21, 2012. 

MARK IT ON YOUR CALENDAR NOW. 

Nothing’s finalized as yet, but I’m hopeful we can recruit the new Director of Dystonia research at UAB, Dr. KAREN JAUNARAJA.  The “key” is in how many seats we can fill to justify her giving us her time on a Saturday.

I happen to know there are great things planned due to the UAB Dystonia Accelerated Research project, to which many of us have given a 3 year pledge and I am sure she would be happy to talk about some of these plans.

Ken L. Williams – DSGA

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